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An Important Announcement to my Dear Friends in the Tickling Community

I'll say this much-you have a lot of guts! MS will never beat you as long as you don't allow it to. My mother was initially given six months to live with breast cancer. She ended up living 27 months because she said she wasn't ready to go.

Fight the good fight and give that disease hell!!! I almost feel sorry for it because it picked the wrong guy to screw with!!!! Then again....NOT!! :cuddle: :grouphug:
 
Thank you all so much for the kind wishes, and to all those who PM'd with personal stories and support. It is because of folks like you that I have a strong support center to deal with this.

I have been keeping my sense of humor honed, and that's been the biggest help so far. To take some of my own philosophical medicine, it's all a matter of perspective.

Funny story...two days ago, I'm sitting in front of the TV with my uncle, cousin and a few friends just shooting the shit. I was really starting to feel better about things and looking at the positives and a bright future...yada, yada...then the news does a segement on Richard Pryor. They wheel this poor guy out while the guy on the TV's going "...his body ravaged by Multiple Sclerosis..." and everybody in the room goes quiet. I get up and said "Great! Now I feel better! If anybody needs me, I'll be in the garage with four feet of pool hose and a muffler clamp!" Half the room broke up laughing and the other half looked at me rather strangly...

Again, thanks for the support...it's the best medicine. :twohugs:
 
Dave ,

I am praying for great things for you. Stand by your beliefs and stay strong. I know that if Sadira were to read this( and she will ) she would probably cry. If there is anything that we can do for you please ask. I know you don't know us but we will pray and love you as though you were right here next to us. Keep fighting and someday they will find a cure. :grouphug:
 
Hey, keep in mind that Richard Pryor had spent decades abusing his body and ruining his health before he came down with MS. Of course it would take a more appalling toll on him than on most people.
 
I admire your attitude and determination Dave2112. I wish the best for you and your family.
Good on ya for having a uplifting positive attitude.
:bouncybou :couch: 😀 :woot: :wavingguy
 
Your great attitude will see you through this.
You and your family will be in my prayers
 
While I have always been a supportive proponent of the "hire the handicapped; they're fun to watch" philosophy I am sorry to hear about this bad news. You have a LOT of people behind you in this fight, and really, I wish I could do more than just type these words. Good thoughts for you in your fight against MS.

Don't worry about Richard Pryor's shape - he's old, he's half burned up, and I'm sure his drug use seared more than a few neurons that he could have used about this time in his life. His condition's just a little different than yours.
 
Dave -

I am sorry to hear about your news, but like others have said, the right frame of mind (i.e. being informed and thinking positive) and support in the form of family and friends will take you far.

My mother was diagnosed with MS a little over a year ago. It took them over a decade and three events to finally pinpoint it. Other differentials included everything from silent strokes to inoperable brain tumors. The key to her diagnosis came when she had a contrast CT scan of the brain and spinal cord - which used to be ignored when considering testing for MS. Her demyelinating lesions range from mild to severe in certain areas. Her form (and everyone's is different as you well know by now) is mild remitting MS. It makes knowing the progression of the disease a lot trickier and being able to determine if treatment is working almost impossible. She's had years between "episodes" as they call them - almost always triggered by a major illness or infection. She lost part of her visual fields for months the first time, but they couldn't prove MS. Funny thing was, when she was finally diagnosed, the neurologist looked at her and said, "well, obviously you don't have MS or I'd have seen you a lot sooner (it had been 5 years since her last event)." Bottom line, not all doctor's have a great sense of humor...

As my mother's caregiver, I do weekly injections for her based on what type of treatment she wanted to pursue. She's managed to avoid the older, more immunosuppressive types of drugs so far. The hard part is now even her primary physician doesn't know what to attribute to "old age" vs. a sign that her disease is worsening. Since she was diagnosed later in life than most, she's a post menopausal woman with urinary incontinence issues (sorry if that's too detailed...but I'm sure at least some members can relate) that they try to medicate her for but then wonder if/why the medicine works. I watch her struggle to walk up the stairs each morning and never know whether it's arthritis issues creeping up or lack of muscular response. I do know that she has joined a gym to improve her muscle tone and her balance and she feels that this has helped her tremendously. She's very well read on her disease and attends all kinds of lectures sponsored by drug reps and hospitals so she knows what is out there and what to expect. Ask me about aspartame sometime...lol. She's always trying to find out little things that other MS patients have noticed and tries to avoid these - especially around the time when she receives her injections each week.

Sorry this has been so long winded. I know a lot of people who know someone or knows of someone who knows someone with MS. I just wanted to offer my support for your coming forward with your diagnosis (my mother still hasn't told co-workers - and yes, she does still work, or family members whom she is not close to). I'm glad you shared and hope you take advantage of all the positive feelings. Don't hesitate to PM or e-mail me if you'd like (as a vet, I sometimes just help her sort through some of the medical jargon, not insulting your intelligence, just offering to translate some of the mumbo jumbo words we use to describe things). Best of luck to you in your battle against this disease.
 
My dearest friend's mother has had MS for 27 years. Needless to say, I receive regular updates from her and stories about what happened over the years. Most importantly, I've learned from her that a huge percentage of us that don't personally have MS will however be touched by someone who does. And when that connection is made, education is key!

You have a most challenging set of pathways ahead of you that I do no envy. I get that sappy feeling that you'll handle them like everything else in life. Finding reasons to laugh, and sharing useful information with others.

Sappy is GRAND!

I'm Pleased that you have such good contacts here that you can openly share. That has just lifted you in many prayers circles. Mine is that you live your life as long and as happily as possible. But, I cheat, that's what I pray for everyone! 😛

Good luck with that new PT trainer,,,,she looked familiar.

Jo
 
One of my aunts has had this for about ten years. It's a shitty thing to happen Dave, but you sound like you've got the mental resources to give it a kicking or three. Like everyone else, I'm keeping you in my thoughts and I'll be buzzing you through the ki from time to time.

Keep your chin up mate.
 
ticklingfeet4fu said:
Dave ,

I am praying for great things for you. Stand by your beliefs and stay strong. I know that if Sadira were to read this( and she will ) she would probably cry. If there is anything that we can do for you please ask. I know you don't know us but we will pray and love you as though you were right here next to us. Keep fighting and someday they will find a cure. :grouphug:


Dave,

I admire your attitude and fortitude. I do send my thoughts and prayers out to you.

And, yes, Tf4f was right. Pass the Kleenex box.......

Hugs,
Sadira
 
Can they do anything with stem cell transplants? Thats' how they fight blood diseases like lukemia and multiple meyloma, when the immunity system in place within the blood starts destroying other blood cells. Is the technology there?
 
:grouphug:

Dave, Sorry to learn of your illness. Being only a member here for a year, I think I can safely say your TMF family cares for ya and we'll be here when ever you need us. You're in my thougths and prayers daily!!!!

Feel Better :happyfloa

witchtickler :firedevil
 
What Can i say but I am sorry to hear that...

But that I admire the way you're taking it and I want to let you know that I myself am right behind you and I'm sure that everyone else is there with me. Lets chat anytime you want to.

Dave2112 said:
Greetings all,

For some time now, many of you whom I interact with on a regular basis have noticed a marked drop-off in my Forum activity. In addition, I have been asked on many occasions why I haven't been creating any new artwork or fiction for awhile.

I had been putting this off for quite awhile, just to be sure. Every once in awhile, something happens to you that at first you feel you should tell everyone, but then start to realize the finality of it. Kind of a self-denial sort of thing. However, things are pretty darn certain at this moment, so I feel it's time to let my friends know what has been happening.

A couple of months ago, I was diagnosed with Multiple Sclerosis. From what I've been told, I probably had it for quite some time, but it often gets misdiagnosed, as there are many afflictions that can mimic MS. For those who are unaware, Multiple Sclerosis is an auto-immune disorder in which the immune system mistakes the nervous system for an invading body and targets it. It strips away the insulation surround the nerves of the body, notably the brain and spinal cord. Basically, things start to short out, send false signals or none at all. The sneaky thing about MS is that you can have 100 people with it, showing 100 different sets of symptoms.

I have been suffering mostly from moderate to severe leg pains, extreme fatigue, nasty tremors in my right arm and about 80% loss of sensation and control in my left leg. The arm and hand tremors often interfere with my typing, and it takes me longer to write things now. Also, the fine motor skills required for my artwork are becoming more challenging to control.

So, here's where I stand. I am not leaving the community, or stepping down as a Moderator. For the forseeable future, I will remain an active member of the community, albeit to a lesser extent. I have no immediate plans to retire from creating original artwork or writing new fiction, I only ask that you please understand the inactivity between works.

My spirits and humor remain intact, as does my belief in the healing power of community and brotherhood. The way I look at it, I can sit around feeling sorry for myself, or I can just see what I'm capable of doing on any given day. Take it from there.

When something like this happens, you do gain a somewhat deeper perspective on things, especially when it comes to the importance of the things we often overlook. Or the futility of the things we fight over. I urge all of you to be gracious with the gifts you have, hold on to your friends and never lose the ability to appreciate the magnitude of a single day.

I will, of course, keep you posted as things change or develop. We are a tight community, and one that is known for the bonds it creates. If there are any of you with a similar aflliction and would like to talk, my door is, as always, open. That's the great thing about the Internet...people can come together from all over the globe to lend support to one another.

In closing, I thank you all for the friendship, support and acceptance you've shown me since first becoming a part of this community. Counting myself a member of such a fine group of individuals has been a highlight of my life, no matter what else happens.

Thank you for your time,
Dave
 
Big Dave my prayers are with you.

Read an article in my local rag about a stem cell researcher at UCI (University of California Irvine) who himself has MS.

Not sure about the timeframe of the photo in the article but he looks fit as the day he was born.

(Phillip Schwartz is his name... Google didn't come up with much.)

He has high hopes that someday stem cell therapies will conquer MS.

Hang in there bro.
 
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Blessings and good thoughts your way, I grew up watching many different people deal with MS...so to an extent, I understand.

You are in mine (and apparently many other's 😱 ) thoughts.
 
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