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Taking A Turn For The Worst..

Leo., my intention was not to dispute, or get anything locked. Jericho stated his opinion, I stated mine. I was in no way rude or attacking to Jericho.

My mom had a cohearent day today. Hopefully that will continue.

Mitch
 
One other thing I should say..

One weakness I have is not dealing with death well. I admit it. Divorce, estrangement, financial setback, thats not as much of a problem as death of a loved one is for me.. As long as I have a roof over my head, a bed to sleep in, food on the table, cable TV, internet, and some money in my pocket, I dont need trips to Europe, etc.

Death is another story. For the most part, I get devestated when anyone close to me dies.

When my maternal grandfather died in 1989, I lied in bed at my grandmother's apartment, staring into space for a week. So much so that my grandmother accused me of thinking his passing was only my loss. She was right. I was an asshole. I apologized to her, and she accepted. I know I didnt think of her enough.

When she died in 1995, I handled it much better. My mom was devestated, and said it took her a year to get over it. I remember saying a prayer the night before she died, crying a little on the day she died, and at the funeral, then I got strong, to support my mom.

This.. is far different. Even my father knows this. This is my mother. My whole life is going to change on a day to day basis, in addition to losing my mom. I';ll be moving, doing different work, seeing people I havent for a long time, and meeting new ones.

My father says its normal that I'm going to be shattered when my mom does pass. I'll be interested to see just how supportive he really is. If I dont feel his support, I'll have the funeral, see a couple of friends, and come back to Lancaster from NY after 2-3 days. If hes supportive, maybe I'll stay a week, and stay with him several days, and even help him with work to take my mind off it.

Even though my mom's death will be expected, I know its going to hit me like a ton of bricks. Even my internist knows this. As to what extent, remains to be seen. As much as I will miss my mom, and as crushed as I'm going to be, I dont want her to suffer, and I know that I have to pray for her to pass, if she is in pain, and not only think about how upset I'll be. I love her too much for that.

Mitch
 
Two things since I last posted in this thread.

My aunt was here from Mon afternoon to Wednesday night. The visit went well. My aunt and I got along fine, and we had two very good visits with my mom, where she appeared to be feeling decently. I'm going to the home later today.

Then, I was confronted by a situation where my internist refused to renew my meds, until I had a visit with him. While I've lost some weight, I'm still several lbs overweight. I did not want to go. My aunt was pushing me to see my Dr to get my BP checked, and my dad was pushing me at first, then backed off.

The good news is: On Thursday, my internist renewed my meds, and told me to come when I can. My aunt and my dad can say what they want, but.. even if my weight wasnt a problem, I cant see how my bp wont be high, considering all thats going on.

Right now, I'm going to play it by ear. My only concern is my mom.

Mitch
 
In reference to what Crystal said..

I will try very hard not to make any new threads on these topics.. until my mom dies. At that point, I will make a new thread announcing her death to the forum. Besides that, I will either post it in this thread.. or in the blog. When my mom does pass, I'm sure I will want to create a support thread to get support from my friends. Hopefully the mods will understand that. Thanks.

Mitch

I completely understand , Mitch. And I know things are hard for you & I really wish I could say something to make the pain easier.

I did not make this move out of spite , I just wanted you to have one consistent outlet and it will also be easier for your friends here to keep tabs on you and what is going on. You have a lot of great support here.


- Jo
 
Jo, thank you for your kind words and support. I know you didnt make the move out of spite, and understand why you had to do it.

There's really nothing anyone can say to make the pain easier, but I appreciate the thought. The support of my friends is instrumental in helping me get through this nightmare, and is keeping me going.

Mitch
 
Maybe I should post this in the other thread about the posessions, not sure, but something happened today..

I went to visit my mom at the home. At first, she seemed okay. After lunch, she had a lot of pain in her stomach. The nurses told me that when I wasnt there yesterday, she was happy, and such. I'm beginning to wonder if seeing me, is making her sad/unhappy, because she doesnt want to leave me.

I dont know how the subject came up, but, of course I white lied to her, saying "Mom, you have a lot of things that you dont need. I'm going to sort through them before you come home". (Which is what she thinks is going to happen eventually.) She knows our lease expires April 30th, and said something like "Mitch you have to sign a new lease". (Which if God Forbid she passes short term, I wont do, because I'm moving back to NY then). I said something like "Mom, we have time to give in the lease, I will".

According to the nurses, she isnt medically close to death yet. I think she looks dreadful, even though they claim she eats, and has gained 3-4 lbs this week. She got sick to her stomach twice while I was there.

I'm relieved we are having loving visits. It's so emotionally draining. Then, I think of the alternative, and think if she wasnt there for me to visit, and I'm thankful I can still visit her, emotionally draining or not.

Mitch
 
Something weird has been happening lately..

I may have posted on here before how I have literally thousands of handwritten tickle bandit stories, in a box in my closet. I've been writing them since I was young.

Although I had stopped writing them for a while, in the last couple of weeks since I've been home alone, I've resumed again. However, some of the people I've written them about recently, are people I havent thought about or seen for a long time.

A friend of my mom's when I was a teenager, a speech therapist I had in high school. I wrote bandit stories about these women, years ago, when I knew them, but havent even thought about them for many years. I wonder if a life changing event, makes you think of girls you knew in your past more.

Mitch
 
Maybe I should post this in the other thread about the posessions, not sure, but something happened today..

No, one thread seems to be enough for now Mitchell.

I went to visit my mom at the home. At first, she seemed okay. After lunch, she had a lot of pain in her stomach. The nurses told me that when I wasnt there yesterday, she was happy, and such. I'm beginning to wonder if seeing me, is making her sad/unhappy, because she doesnt want to leave me.

This is a definite possibility. Have you seen the movie What Dreams May Come with Robin Williams? After he is killed in a car accident (while saving somebody else), his "spirit" remains on earth in an attempt to comfort his wife (who has now lost her husband and children). However, as it evolves, he learns he is hurting her more than he is helping her. When she senses his presence or wonders if he's there, it takes her longer to mourn and to get over the pain.

This is why it is important for you to spend time alone (not necessarily offline) to strengthen your own resolve. It's inevitable that your mother is doing to die. Sad, but true. Another man (God) loves her and needs her more than you do. After that, you're going to have to go on living your life. Do you have anything in the works? This is why I said you should spend time alone... just because quite often, our lives are so full of chaos and disorder that we rarely (if ever) take time to just unplug from everything and listen to our own thoughts. Some people don't even know how to do that anymore with the advent of all the technology we have.

Your mother loves you, but she probably wants you to move on as well. Maybe it's just not something she's able to say to you, but out of respect, maybe you could start having more of a life (I say that in a nice way) and SHOW her how happy you are... or at least on the way... instead of pretending you're happy.

Yes, when people die and go to Heaven (or Hell), we mourn their passing, but try to smile more and celebrate your mother's existence? Be thankful for all the good memories you have with her. At the very least, instead of being a sad, crying son for her in her last days, you can be strong and happy for her. She deserves smiles, not tears.

Finally, it's time for you to get over your issues with God and pray. While it may sound harsh and insensitive, everything you're going through (which is more than many people on this forum), there are thousands (if not millions) of people that still have it worse. It's difficult for us to see that when we're actively going through something ourselves, so if you think you have it bad, think of how it could be worse... even if it's "silly" little things you just mentioned you're thankful for (internet, cable, TV, movies, etc.). Your life is great compared to others. God is testing you, so if you think this is hard and you're "giving up" on him, well, for your mother's sake, you should still have faith, at least until she passes and is secure in Heaven. After all, she'll be spending eternity there, so giving up now while you're here on Earth isn't good for her in the afterlife.

According to the nurses, she isnt medically close to death yet. I think she looks dreadful, even though they claim she eats, and has gained 3-4 lbs this week. She got sick to her stomach twice while I was there.

Probably hospital food. You should make and bring her food from home. To cut down on costs, it's possible that they might put things in hospital food that patients aren't aware of and can't detect.

I'm relieved we are having loving visits. It's so emotionally draining. Then, I think of the alternative, and think if she wasnt there for me to visit, and I'm thankful I can still visit her, emotionally draining or not.

That's wonderful you're enjoying her final days, Mitchell. Remember to concentrate on yourself though as well. Everybody wants that, including your mother and God (more than anybody). No matter how much you run away or fight, you can't escape him, and he'll always be there for you.
 
Not withstanding the previous comment..

When I was just about to get off the exit where the home is today.. the nursing home director called me on my cell phone. The first words out of his mouth were "Mitch,. I have some bad news". Of course, I was terrified. I thought for sure he was going to tell me my mom had passed away, or slipped into a coma. It turns out.. his "bad news" was two things. One, my mom was acting out, and was being room switched. Two.. the home in Lancaster had no beds as of yet, and wouldnt for up to a week. I was infuriated, and firmly told him never to start a conversation with me in that manner again, unless he was actually calling to tell me my mom had passed away. Sigh! I spent about 3 hrs with my mom. She wasnt bad, except for a little bit at the end. Her new roommate is a 93 year old lady, whose mature daughter visits her twice a day. OMG, moment of comedy, although I forget the exact wording, the daughter mentioned something about doing cleaning, and standing on a ladder to do it lol, although she didnt say she had been barefoot. Had I not been going through this terrible time, I would have loved it. As it is, it went over my head. The woman also told me that she knows people with last stage brain cancer who live 2 yrs or more. I'm not saying thats going to happen to my mom, but it was good to hear that things like that can happen.

Anyhow, thats the latest. I hope I wont be going back until Wed, when I have a meeting with the director.

Mitch
 
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I had the meeting today, with someone who is the equivalent of the guy I've been dealing with, and the rest of the team thats working with my mom.

According to the people I've spoken to, she has gained 4 lbs this week, and eats about 75% of each of her meals. They all told me that she is nowhere near physically close to death yet. She was very happy to see me at first, and then things went sour. She was hoping we would have a malpractice suit against her Drs in NJ, for telling her she was "cancer free" in Oct, and then this happening, but when I reported to her that a couple of lawyers told me there will be no suit, she got very angry. She also told me that she thinks she is going to die soon. Sigh! Hopefully the end of the visit was just a bad spell, and she will be better on Friday.

Mitch

I also found out that there are still no beds available in the Lancaster nursing homes, so I will be going up to Reading for at least a while more. Hopefully they will find something in Lancaster soon.
 
I hope that a bed in a nursing home opens up for you.

A couple of years ago I heard a prediction that if a 100 bed unit opened every week in Pennsylvania, we would fill them because of our aging population.
 
A couple of years ago I heard a prediction that if a 100 bed unit opened every week in Pennsylvania, we would fill them because of our aging population.

Agreed. You're going to have to learn to "enjoy" the trip to Reading as much as you can, Mitchell. Take it as a sign and an opportunity for you to collect your thoughts on the drive. Maybe you can burn a CD full of relaxing music to help you feel more at ease with things. Think of this as a blessing from God.
 
jericho, I dont agree with you that this is a blessing from God for me. This is one of the worst punishments I can ever have, but.. I'll have to deal with it.

For as much as I've complained about my assistant on here, he has been supportive in this time of my need. He has been driving me up to Reading, and told me that if my mom does die at 2 or 3am, I can call him to go to the home and ready the papers/situation/funeral if needed.

I have a lot of unpleasant things to do today. First I have to go see our attorney. (He doesnt know the situation with my mom yet, as I havent had a chance to go see him). Then I have to go to the home. That's always so fun, not knowing how my mom is going to be from one minute to the next.

Mitch
 
Today was a tough day. My mom wasnt feeling well. Also, my own attorney confirmed that I unfortunately have no malpractice suit against the Drs in NJ, so I have to drop it. One of the Drs had wanted to know when my mom passes, but I'm not going to tell him. The staff at the nursing home confirmed that the Drs in NJ failed to take several scans, such as brain tests, etc.

There's nothing I can do. I just have to cherish my mom's last days with her, and hope she is as pain free as possible.

Mitch
 
The plot thickens... Something happened tonight, and I';m not sure what to do.

My aunt is coming from April 4 to 6. As most people know, Passover begins on the 6th. My aunt will be traveling back to NY. Upon talking to my dad tonight, I learned that one of our cousins is having a family Passover gathering on the 7th. My dad and I talked about the idea of me meeting his wife in the next week, and then staying at his place the weekend of the 6th, and going to the party. I told him I definitely wouldnt do it if we are on an official death watch for my mom, as with my luck I'd get to his place, and be called back to Reading the same night. I'm not sure whether to do it at all. My mom is on her deathbed, and I'm partying it up. I told my dad I'd have to see how she is on the 6th to make my decision.

Any thoughts on whether I should go, if shes not officially dying by then?

Mitch
 
I had a big time scare.

Usually, I call the home 1-2 times a day to check on my mom, but hadnt gotten a chance yet, because of being busy this morning. I had been on the phone with family and friends this morning, and was getting dressed to leave the house, when the home's number lit up. I thought the worst. Apparently, my mother was being physically abusive, etc, as she had been before. They told me shes not medically close to death yet. The call makes me rethink my position of going to NY on the 6th. The driver doesnt think I should go, and I'm beginning to question it too. I'm thinking what happens if I'm up there, she passes, and I have to run home like a bat out of hell from 150 miles away.

Sigh! I wonder what will await me tomorrow when I go.

Mitch
 
GRRRRRRR! After the home called me, making it sound like she was declining, I just called them now, and they told me that she's quiet and fine, and just needs some clothes. Clothes is no problem. I have no idea why that nurse called me, making it sound so bad.

Sigh! Hopefully all can stay quiet. I can only wonder what awaits me when I see her tomorrow.

Mitch
 
The end may be near..

I saw my mom today, and she seemed fine. Tonight, I got three calls from the home. My mom has a 103 fever, and a fast heart rate. Whats so bad is that she is so far away. I was going to go out for a day of fun tomorrow, now I have to go to Reading Hospital.

Sigh!
'
I dont want her to suffer. If shes going to, I want her to go gently.

' Mitch
 
The end may be near..

I saw my mom today, and she seemed fine. Tonight, I got three calls from the home. My mom has a 103 fever, and a fast heart rate. Whats so bad is that she is so far away. I was going to go out for a day of fun tomorrow, now I have to go to Reading Hospital.

Sigh!
'
I dont want her to suffer. If shes going to, I want her to go gently.

' Mitch

It could be pneumonia; once that sets in they can give her antibiotics. If she keeps mentally spiraling she could get Ativan. If she's in pain they can give her morphine. Whatever her situation, they can give her comfort care measures.

Do whatever you need to in order to make her as comfortable as possible.
 
kis and Ann. Thank you both.

I talked to the ER Dr at Reading Hospital. It is very, very serious. She has nearly a 103 fever, a racing heart rate, etc. The Dr said one problem is that she cant communicate well because of the brain cancer. He asked me what I wanted done. She's DNR, so I told him no electric paddies, but any meds to keep her comfortable if possible. If her heart stops, let her go.

Such is the pitfall of her being in Reading. If she was at Lancaster General, I'd be in the ER already. As it is, I'm going at first light unless she sprials into a coma.

I dont know if this is the end, or some infection. I just dont want her to suffer. If its her time, I will grieve, and have to rebuild.

Mitch
 
I just heard from the ER Dr at Reading Hospital

My mom has what they think is pneumonia, which they are giving her antibitoics. They said the most serious problem now is that she has a pulmonary embolism in her lung, which they cant really treat, because the treatment could cause the clot to go to the brain. The Dr said he doesnt think the embolism in her lung is going to kill her now, but one can never say for certain.

I'm going to try and get some sleep. I will be home tomorrow night, likely, unless she passes, or if I'm on an official death watch. If either of those happen, I will post the status at that time.

Mitch
 
She made it through the night. I'm going to have breakfast and go. I may go back and forth, or stay there. I'm not sure.

My dad is amazing. He told me he didnt sleep, because he is so worried about me, and he has maybe the most important meeting of his life today. Its ironic who comes through for you at the worst times
 
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